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A Memorybook for Carol Echternach

Please post your memories of Carol and messages of hope and comfort for Carol's family by sending them to: 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

I only met Carol once, when I had traveled to California for some 'Respite'. Carol was a wonderful support and contributor to our "Madmamas" online group....we all had children from orphanages in Eastern Europe, Russia and China, and most of us had children with challenges of one sort or another. Carol was part of our group as she worked diligently, tirelessly and without wavering to adopt her three girls from Russia. It was a joy to be part of the journey with Dennis, Jonathan and Carol as they made their dream come true. Also, being part of the sadness with the discovery of FASD and the difficulties that ensued.

 

Carol was a fireball at times, but she loved to play 'devil's advocate' and she surely made us all look at all sides and facets of an issue or problem. My heartfelt sympathies goes out to her family and pray that thy will find solace in each other and in God's presence.

 

donna sill

 

 

My deepest sympathy to Carols family and friends. She helped me in more ways then one. She saved my life numerous of times. She was there for me for 1 year or so. She gave me the confidence to survive through passings in my family, relationship break ups, and my abusive family situation. She never met me although she said she mentioned me to her coworkers from what she told me. She was sympathetic to me yet stern. She always seemed to make me laugh. We talked for hours at a time until she knew I was safe. I'll never forget her and her memory will always remain within me.

 

God Bless you carol may you rest in peace in the hands of the Lord.

 

Kristen Harris

 

Greenwich CT

 

 

 

I am saddened by the loss of Carol.  I didn't personally know her, but I enjoyed reading her contributions to various listserves.  I learned quite a bit from her, and always thought that it would be nice to know her personally.  I know her passing is a huge loss for her family and for the adoption community.

 

I extend my heartfelt sympathy to her family.  You are all in my prayers.

 

Sincerely,

 

Lori Lammers

 

 

Though I did not know Carol I would like to send Carol's family our blessings in thanks for the important contribution she made in our world.

 

Our condolences.

 

Susan Fleisher

Executive Director

NOFAS-United Kingdom

London, England

 

I am so terribly sorry for you loss. Carol was a wonderful person with compassion for others and a world of knowledge. She has always been kind and understanding about our situation with our son who has FAE. I'm going to miss her sincerity in helping others learn more about FAS and how to prevent it.

 Sincerely, Tab

 

Thank You Carol for your kindness in sharing your knowledge on FAS.

 

You did not know me, or many others, that were in the process of or adopting Internationally from countries like Russia where alcohol is used by many expectant Mothers.  There was lots of apprehension and fears of adopting a child with FAS. We were searching for information on what to expect if we adopted a child we learned to have FAS> Do we abandoned our child from Russia with a possible FAS diagnoses?? Well thank you for sharing with us the long term positive side of raising a child with FAS and also for the reality of knowing what we would be confronted with. We were able to reach a comfort level in the challenge of parenting a child with this condition and we are the very proud parents of 2 beautiful children that have FAS related difficulties but are wonderful children. It is through your kindness of sharing this information with us that we were able to handle difficult situations and solutions. You will be truly missed but it was with great honor to have you on our Russian adoption group and I say Thank YOU~. Rest in Peace~ God Bless You and Keep You Close~~ Many Prayers for your Family to help them through your loss.

Cheryl Costa, the Most Proudest of being a Mom to 2 Beautiful Children from Russia** 

 

 

I learned the other day that a wonderful member of our community has left us to accomplish even great things from afar.

 

Carol and I connected some time ago around our common bonds of children with RAD and FASD and through the CALFAS network. 

 

In June of last year, when our son, Christopher died at the hands of another, Carol was there to offer comfort and support and to use her agency to get the message out about how vulnerable our kids really are.

 

She was a non-stop worker, tirelessly advocating for all of us.

 

She will be dearly missed. 

 

The Surbey family extends our gratitude to Carol's family for the major part she played in getting Christopher's memory out and for the shoulder that this mom needed many, many times.

 

Val Surbey

 

 

Dear Echternach Family,

 

    I just wanted to take a few moments to remember this warm, caring, compassionate and vibrant spirit, Carol.  I never met her face to face, but I corresponded with her and shared "instant messages" with her many many times.  

        I must have "met" Carol on another of the many support lists in which I participate, because I remember her wisdom and compassion and validation--well before she asked me several times to join her RAD_FASD list.  I was reluctant to join at first, because I was already so inundated with email.  However I am glad I did, because this became one of my favorite "places".  The group not only has experience and understanding, compassion, support, and validation--it also has warmth and humor, yes silliness has a place here too.  For if we cannot laugh we cannot heal. 

     I am thankful to have encountered Carol, to have shared an online friendship with this kind and remarkable person.  Her pictures show a smile that blazes like sunshine...  and I will never forget that smile.

love, gail (ciao)

 

 

I knew Carol only from the online support group for RAD-FASD children. She was so supportive and knew how to say the right thing to everyone. She had such great knowledge about our children’s problems and what we were dealing with as parents. I’m saddened by her loss and will always remember her through her words.

 

Carol J Rose

 

 

I never met Carol personally,  but she was always there for me as well as

everyone else in the RAD-FASD group. In times of need, grief and struggles,

she always took that extra time to make sure we were ok.

She really loved her family and spoke of them often.

My brother (who had FASD) was murdered 3 years ago, so I understand the pain

of losing a loved one so suddenly.

 The only people that understand were those in the FASD group. And

that's all thanks to Carol.

It's also thanks to her family,  who were supportive of her.

I'm not very good with words when it comes to the pain that you must be

feeling.

But I hope that my words in some way will offer some comfort.

I've been thinking of  your family every day.

Elaine Thomas (Winnipeg, Manitoba, Canada)

 

 

To Carol's Family,

 

Carol was an exceptionally warm & caring person.  I first "met"

Carol on the Russian Yahoo group.  We had just found out that

my son had FAS.  Carol was right there with answers, suggestions,

and support.  Later I joined her FAS RAD group.  Always,

Carol was there, just a click away, as we were to her.  She would make

me laugh when I needed to, almost as if I could see her smile at

her computer.  She was so informative, and supportive all the time.  If

I ever had a question,  she knew the answer.  She was also

so proud of you...her family.  She loved you dearly.  May God

Bless you in Sympathy. 

Sherrie

 

 

Dear Carol, we last spoke about a week before your death, when i heard you had passed, the pain in brought was as great as when i suffered the loss of Jim last September. When Jim died you became my pillar of strength,  you held me up and helped me go on for the boys, you did all you could and more getting the groups to rally to help me and the boys. I met you 4 years ago,, you took me under your wing,, laughed with me , cried with me, we spoke of personal things as if we had known each other all of our lives. I will keep those in to my heart always, I knew your ups and downs and you knew mine, can i say more than as friend i loved yah, and I know the great respect that so many had for you, but you were the closest thing i had to a sister, and I will miss you for the rest of my life,, God must have needed another angel in heaven so he chose to take you home,...to the family i say, may God give you comfort and Peace, May his light and love shine down on you at this moment and always as you go forth in your future, Lana,, you and i spoke several times, take comfort if you will dear that your Mother loved you so very much, as she did your sisters and brothers,, wanting only good things for you and happiness. To the rest of the family I dont need to tell you how much she loved and cared for you all, Im sorry for your loss ,

Blessings,, Benita K. Bylicki-Marzion,

aka Mennonite Mama,,

 

 

Carol's online support group was a huge source of support for me. 

 

The group will never be the same without Carol. 

 

Prayers and Peace,

 

Barb McDonald

 

 

I am so sorry for your loss and our loss of Carol. I have a notebook of saved e-mails with Carol's words of wisdom and insights and her depth of experience, some to me directly and many to others. These have offered and continue to offer me guidance and support these last 4 years, as I am raising/loving/living with my now 5 year old grandson . I intended to visit Carol on a visit to CA and thank her personally. Thus I thank all of you for the gift of Carol on behalf of my entire family , as we live with and love our Darren.

Sincerely with love and prayers, Monica

 

 

TO ALL FAMILY AND FRIENDS OF CAROL'S

My friendship and admiration for Carol began about a year ago when she lovingly reached out and extended a heart of love, sympathy and support to me while our family was struggling to understand my son's complex and distressing behaviors and disorders... Carol was a life line of hope and acceptance .. She taught us to understand all the complexities and gave us empathetic insight to what challenges our family was facing while raising a child with such difficult special needs.

I  will be eternally grateful to Carol for her wonderful sense of humor, her guiding light, and wealth of wisdom that she was able to impart upon us with love, compassion and total understanding.

Carol, you were a great source of strength and inspiration, and I will forever keep you close to my heart!

Stephanie Maher.......Rhode Island

 

 

Hi

I am so sad to hear about Carol

I met her on-line and then later in Riverside.

I have a son adopted from Chile with FASD and diagnosed finally at age 15 yrs of age. Reading her writing...chatting with her online the past four or five yrs......it made all the difference in the world.

I was so sad, tired and isolated and then I met up with Carol and other on-line support...it helped me/us raise our son...and cope Thank you always....she was a star here on earth..and now a star in Heaven.... May God Bless her...and her family and keep you in His arms...

Sincerely Sibyl Morrison

 

 

Dear Echternach Family,

I became friends with Carol in 1998 when she started helping me with decorating my home in Dove Canyon.  With Carol's help we transformed my very cold and bare house into a wonderfully warm and welcoming home.  In addition, when my B/G twins were born in 2004, she gave me the wonderful gift of designing their adorable nursery.  Her warmth and beautiful sense of style surrounds my family.  I am so grateful that I met and became friends with Carol - she was so much fun to be around.  I'll miss her laugh and wonderful smile the most.

With Love and Fond Memories,

Laurie Johnston and Family (Steve, Garrett and Peyton

 

 

Carol & I have been in a number of online groups together (my DH & I have adopted 5 older kids from domestic FC, all with some fetal alcohol & attachment issues, over the last 20 years), but hadn't met in person until last summer, when I was in So Cal visiting my sister & we arranged to meet for lunch.  We almost didn't manage to get back where we were supposed to be--we had so much to talk about & share.  Carol was an incredible source of information & documentation on fetal alcohol issues, as well as a warm & generous person.

She will be sorely missed by all who were lucky enough to benefit from her passion for kids with fetal alcohol issues & their families. 

Leslie Sirag

 

 

So many times late at night I would start reading e-mails from the group.  I never even knew about FASD or FAS until my son was diagnosed 4 years ago.  Carol taught me so much that I will forever be grateful.  I am a better mother because of Carol.  Her beautiful sprit will live on.  My prayers are with you. 

LeeAnn Paddock

 

 

I'm so sorry to hear of her passing; it was a big shock to read a posting on the Russian Adoption Yahoo list that she was gone. She was so helpful on FAS issues. As the parent of an FAE child from Russia, I greatly appreciated her support and knowledge. She is irreplaceable and we will all miss her insights and wisdom.

Ann Fisher

 

 

We would like to extend our deepest sympathy to Carol's family. We have had the pleasure of sharing just a small part of her life, as a friend of many years and a business associate. We will miss her deeply.

Allen and Linda Vincent Kaye Drapery Mfg.

 

 

what a terrible loss. She was loved by a lot of people. She always had such incredible knowledge and always willing to share it. She was my buddy at the soccer games and will truly be missed by all.

God Bless you Carol.

Jeanine and Chloe Roche

 

 

I did not know Carol personally -- only through her thoughtful, insightful and informative emails in our Russia Adoption community chat group. I always valued her comments and words as we completed our first adoption last. May God bless the family and our family sends our thoughts and prayers.

Kind regards, Jodie, Jack and William (age 2 from St. Petersburg).

 

 

Carol possessed many gifts.  Her writings were so vivid that I felt I was a part of them, a caring heart and spirit always welcoming.  I was in awe of her patience of "riding the storms". She knew there would be a rainbow at the end.  Carol offered herself freely and at times I was not real accepting of that, but she patiently stood by waiting for me.  I will miss her writing, her grace, and the excitement that she blessed each day with. I will miss her caring spirit and great smile. 

There's a new star in heaven.

Ak

 

:

I found the FAS-CA site when my children were just diagnosed with FASD. They were very young and I was just treading water, barely getting through each day because I didn't understand how much the environment and the expectations had to change. Everyone on the site was such an advocate for their child and I felt lost. One day I posted that was not going to stay in the group because it was too far down the road for me. Maybe I could get to the advocacy stuff later. I needed practical suggestions for just about everything, not political involvement. I loved the posts about Lana, but even then she was so much older than my girls and her early neglect had lasted so much longer. Carol posted back, lovingly, caringly, about how this group of caregivers had the most and best advice about anything and everything. I had but to ask. When I said that I didn't even know where to start, she walked me through, step by step, making me feel at home in what now has become my family.

When I went to the Riverside Convention, I had to arrive a day later than everyone and I was just a little scared. It was the first time I had left my children overnight and I didn't really know anyone. I mean, I knew the names, but not in person. I got my name tag, but no one was in the lobby. I timidly entered the display area and there was Carol behind the CalFAS table. I recognized her from the family albums she had posted so proudly of her girls. I introduced myself to her and she nearly flew around the table to embrace me. I have never felt so welcome and at home. She was my open door into the world of FASD parenting, and surviving and then going beyond that daily survival. She gave me such insight into the minds of my children and helped me be calm in the face of their rage. Her words touched my very soul and I admired and respected her. I counted on her being there always. And am now at a profound loss. She was the footsteps I was trying to walk in and the path ahead will never be so clear again. I feel enriched for having known her and bereft at her passing. And I am not alone.

- Tyla Sawyer, Director CalFAS

 

Hi!

I never had the privilege of meeting Carol face to face, but we talked via e-mail.  I think of Carol as a very intelligent, caring and articulate woman.  I also thought of her as a FASLINK friend.  She will be missed!

You have my heartfelt sympathy,

Bobbi Hershey

 

 

to the family of Carol E

i did not know Carol E personally

but followed the calFas development and her family stories shared

through faslink. those who were close to her will carry her in your hearts.

please remember we are here for you at faslink. always bring your memories and inspirations here for a listening ear. she shall not be forgotten. and we will not

forget your loss. we are so deeply sorry for your loss.

may the creator hold you close

lindalee and jesse, minnesota

 

 

Please pass my deepest sympathies to Carol’s family.  I had many long conversations with Carol via the internet.  We did not always agree but we had great respect and what I felt was love for one another.  I will truly miss her.  The world will be a little less bright with her passing.

 

Renae Sanford

President

Wholistic Family Legacy Foundation of Canada

www.wholisticfamily.net

 

 

Carol was a kind and informed parent who shared her knowledge and heart with many of us on the FASLink.

It was an honor to have known her and an honor to be her friend.

She will be missed so very, very much.

Our prayers go out to her beautiful family and her grieving friends.

With love, Peggy and Ken Oba

 

 

On behalf of FASS - Fetal Alcohol Support Society, Grande Prairie, Alberta, Canada, we would like to send our sincere sympathy to all who knew Carol.
Thelma
FASS - Fetal Alcohol Support Society
Alcohol - Canada's WMD

 

 

I only met Carol once, when I had traveled to California for some 'Respite'. Carol was a wonderful support and contributor to our "Madmamas" online group....we all had children fron orphanages in Eastern Europe, Russia and China, and most of us had children with challenges of one sort or another. Carol was part of our group as she worked diligently, tirelessly and without wavering to adopt her three girls from Russia. It was a joy to be part of the journey with Dennis, Jonathan and Carol as they made their dream come true. Also, being part of the sadness with the discovery of FASD and the difficulties that ensued.

Carol was a fireball at times, but she loved to play 'devil's advocate' and she surely made us all look at all sides and facets of an issue or problem. My heartfelt sympathies goes out to her family and pray that thy will find solace in each other and in God's presence.

donna sill

 

 

My deepest sympathy to Carols family and friends. She helped me in more ways then one. She saved my life numerous of times. She was there for me for 1 year or so. She gave me the confidence to survive through passings in my family, relationship break ups, and my abusive family situation. She never met me although she said she mentioned me to her coworkers from what she told me. She was sympathetic to me yet stern. She always seemed to make me laugh. We talked for hours at a time until she knew I was safe. I'll never forget her and her memory will always remain within me.

 

God Bless you carol may you rest in peace in the hands of the Lord.

 

Kristen Harris

 

Greenwich CT

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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